Experiencing HIV and AIDS information: a phenomenological study of serodiscordant couples in Malawi

Type Thesis or Dissertation - Doctor of Philosophy
Title Experiencing HIV and AIDS information: a phenomenological study of serodiscordant couples in Malawi
Author(s)
Publication (Day/Month/Year) 2015
URL http://etheses.whiterose.ac.uk/10743/1/PhD_thesis_Kondwani_Wella_2015.pdf
Abstract
There being no cure for HIV, information continues to play an important role in the management
of the pandemic. However, the ability to design successful HIV and AIDS information campaigns
is highly dependent on knowledge of people’s information behaviour. Accordingly, there is a need
for a clear understanding of the information behaviour of specific groups of people affected and
infected by HIV. This phenomenological study investigates how serodiscordant couples
experience HIV and AIDS information. In-depth interviews were conducted in the homes of
twenty-one serodiscordant couples and three individuals who had separated from their partners.
Participants for the study were selected purposively. Data analysis was done using Max Van
Manen’s phenomenological approach to generate descriptions and interpretations of the couples’
experiences of HIV and AIDS information.
The findings of this study identify three major aspects of experiencing HIV and AIDS information.
First, the life-world is the overarching context of experiencing HIV and AIDS information. The
study identified five existentials of the life-world of serodiscordant couples. The four of the five
existentials were similar to those described by Max Van Manen. These are: lived body, lived
space, lived others, and lived time. In addition, my study identified spirituality as a fifth existential.
The second aspect of experiencing HIV and AIDS information concerns the nature of HIV and
AIDS information. Serodiscordant couples experienced information sources before experiencing
the information itself. In these sources serodiscordant couples categorised HIV and AIDS
information as being available or unavailable, and accessible or inaccessible. Thirdly, HIV and
AIDS information was experienced with various emotional and cognitive states of mind. The
emotions were categorised as positive, negative, and ambiguous. Furthermore, this study
proposes a conceptual framework for experiencing HIV and AIDS information. The conceptual
framework suggests that HIV and AIDS information was experienced while anticipating it,
interacting with it, acting on it, and reflecting on it.
These findings reveal the complexity of experiencing HIV and AIDS information among
serodiscordant couples. Recommendations are made for policy makers and practitioners on the
importance of using knowledge of how serodiscordant couples experience HIV and AIDS
information to design information services that suit their needs. In addition, this thesis highlights
the need to have standard information materials for specific groups such as serodiscordant
couples in order to effectively address their unique information needs.

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